Navigating Large Crowds In A WheelChair: My First Concert Experience...I have anxiety about being surrounded by large groups or crowds of people. But when Taylor Swift announced her 1989 World Tour...reactions2comments
Nighttime Tips and Tricks...Based on my friend Allie’s article about her morning routine, I thought I'd offer my nighttime routine. Here are some nightly tips...reactionscomments
My Evrysdi Journey So Far...On December 23, 2016, I celebrated my birthday, marking a momentous occasion: the FDA had approved Spinraza as the inaugural treatment for...reactionscomments
First Home Renovation...Buying a home is an exciting adventure. However, when you are dealing with a disability like spinal muscular atrophy, you know that...reactionscomments
Applying for Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...
How Do I Connect With Other People in the SMA Community?...Spinal muscular atrophy (SMA) is a genetic disorder where muscles become weak and waste away. Our goal at SpinalMuscularAtrophy.net is to connect...reactionscomments
Making Friends as an Adult with SMA...Back in elementary school, the worry about making friends lingered—I feared judgment based on my wheelchair and back brace. My hope was...reactionscomments
Traveling Shower Hacks...One of the most common questions I get asked regarding my frequent traveling is how I shower. Of course, this depends on...reactionscomments
Balancing Life When You Are Ill...Life with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal...reactions2comments
What Does Independence Look Like?...My friends Sawsan and James were in the Easterseals Disability Film Challenge. The film is called Out of Reach. In it, James...reactionscomments
New Year - New Me?...I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away...reactionscomments
Honest Look at a Parent’s Heartbreak...The emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease...reactionscomments
Courage...Sometimes I find my confidence and insecurity going hand in hand. I know this might sound strange, but it's true. I don't...reactionscomments
Why Advocacy Is Important to the SMA Community...For families and people living with spinal muscular atrophy (SMA), health advocacy is a vital part of navigating the condition and improving...reactionscomments
Having Able-Bodied Siblings As Someone With SMA...I am the youngest of my siblings at twenty nine years old. I have two step-brothers and one step-sister. Due to genetics...reactions2comments
Assistive Equipment: Adults...Adults with spinal muscular atrophy (SMA) may have lower mobility because of progressive muscle weakness. This can make it harder to carry...
Becoming Okay With My Anxiety...In middle school, I gained anxiety and was in pure denial, especially when it came to getting help, I was in that...reactionscomments
The Advocacy Issues That Matter To Me...I feel like I've mentioned my advocacy here and there, and I'm sure we all know the reason behind why it's important;...reactionscomments
Personal Growth...Being born with a genetic disorder like spinal muscular atrophy forces us to adapt to a world that wasn’t built for disabled...reactions2comments
Fears Of Flu and Fevers...As summer eventually becomes fall and winter, bringing with it an increased risk of illness, those of us living with spinal muscular...reactionscomments
