Courage...Sometimes I find my confidence and insecurity going hand in hand. I know this might sound strange, but it's true. I don't...reactionscomments
Why Advocacy Is Important to the SMA Community...For families and people living with spinal muscular atrophy (SMA), health advocacy is a vital part of navigating the condition and improving...reactionscomments
Having Able-Bodied Siblings As Someone With SMA...I am the youngest of my siblings at twenty nine years old. I have two step-brothers and one step-sister. Due to genetics...reactions2comments
Assistive Equipment: Adults...Adults with spinal muscular atrophy (SMA) may have lower mobility because of progressive muscle weakness. This can make it harder to carry...
Becoming Okay With My Anxiety...In middle school, I gained anxiety and was in pure denial, especially when it came to getting help, I was in that...reactionscomments
The Advocacy Issues That Matter To Me...I feel like I've mentioned my advocacy here and there, and I'm sure we all know the reason behind why it's important;...reactionscomments
Personal Growth...Being born with a genetic disorder like spinal muscular atrophy forces us to adapt to a world that wasn’t built for disabled...reactions2comments
Fears Of Flu and Fevers...As summer eventually becomes fall and winter, bringing with it an increased risk of illness, those of us living with spinal muscular...reactionscomments
Health Literacy and SMA...For people with spinal muscular atrophy (SMA), health literacy is crucial. SMA is a genetic disorder that affects muscle strength and movement...reactionscomments
Discrimination Situation...Around five years ago, I had a throbbing toothache. I had no idea what was wrong other than my face hurt and...reactionscomments
“I Have Chosen To Live With It Rather Than Just Survive”...Hello My name is Rafael Garcia, and I want to share with you a little bit about myself. I am a 27-year-old...reactions3comments
Unique Accessible Seating During a Fun Weekend Trip...Hello everyone! Hope all is well! Today, I wanted to talk about a fun and interesting accessible seating option. So my family...reactionscomments
Hug Me Not My Wheelchair Please...I’ve been driving a power wheelchair since the age of two. My wheelchair has been a part of my life and a...reactionscomments
Navigating Kidney Health with Spinal Muscular Atrophy...As a 34-year-old individual living with spinal muscular atrophy (SMA), my journey through the healthcare system has been extensive and enlightening. Regular...reactionscomments
Abilities Expo...I have been using my new powered wheelchair for about a year. When I am sitting for long periods of time, I...reactionscomments
Welcome to SpinalMuscularAtrophy.net Stories...At SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge...reactionscomments
How To Spend a Summer With SMA...Summer is finally here and I couldn’t be more excited for all the warm weather and thunderstorms to come. With summer here...reactionscomments
Using Your Disability to Impact Lives...The beauty of sharing our stories lies not just in the telling, but also in the impact they can have on others...reactions1comment
Taking Care of a Child With SMA...By its very nature, caregiving can take an emotional and physical toll on your health. If your child has spinal muscular atrophy...reactionscomments
Spinal Muscular Atrophy Research...Understanding of spinal muscular atrophy (SMA) has come a long way, especially in the past few decades. Researchers in the 1990s found...
