Accessibility Challenges...Have you faced accessibility challenges lately? Maybe when trying to go out and do something social? We want to hear your stories...reactionsrepliesTips & AdviceDisability
Dressing Room Experience as a Wheelchair User: Tips and Personal Insights...Trying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if...reactionscomments
Managing Depression...I want to understand how personal with SMA cope with mental depression when you lose the ability to do certain things which...reactions28repliesCopingDepression
Food alternatives...I am a SMA type 3 person and onset started around age 13. I am currently 38 and ambulatory, though it is...reactions4repliesDiet & Nutrition
Interabled Relationships are Just Like Any Other Relationship...Love knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled...reactionscomments
An Accessible Cruise Vacation...I just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what...reactions3comments
May is Mental Health Awareness Month!...It's ok to not be ok. It's valid to feel all the highs and lows that life hands you, especially when living...reactionsrepliesMental Health
Fears of the BiPAP...Living with spinal muscular atrophy, you'll often find yourself consulting a pulmonologist from a young age. Over the years, there have been...reactions1comment
Mental Health Awareness Month...May was designated National Mental Health Awareness Month in 1949 by the United States Congress due to the increased number of veterans...reactionscomments
Preventing Pressure Injuries for wheelchair bound...Hi SMA community, I am a caregiver for my 70yr old father diagnosed with SMA 3. He is currently receiving Spinraza. Our...reactions4replies
The Promise of Treatment...Our family journey began when Mike was five years old. After a barrage of testing and doctor appointments, we were given the...reactionscomments
Keeping Positive During Life’s Transitions...Our lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so...reactionscomments
Cure SMA Conference Tips...I went to the Cure SMA Conference for the first time when I was 10 with my mom, dad, and grandparents (my...reactions1comment
The Mom In The Wheelchair...Recently, I had an experience I didn’t know I desperately needed. I went to volunteer in my daughter’s kindergarten classroom. I was...reactions1comment
Maintaining Relationships with Family and Friends...Caretaking for a loved one is a full-time gig. I purposely used the word gig instead of job. I really love what I...reactions1comment
A Family Affair...I have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is...reactions2comments
We Flow with the Changes in Our Child...Yes, your role as a parent changes remarkably as your child grows from that little toddler into school age and then again...reactionscomments
Self pleasure tips...Hello. Please delete if this isn't appropriate, but I was just curious what y'all do to help yourself when you're in the...reactionsrepliesIntimacy & Relationships
Disability Does Not Make You Immune to Hardship...Recently, I have had a huge life transition and not a positive one. I feel society often thinks that disabled individuals do...reactions1comment
“I Have Chosen To Live With It Rather Than Just Survive”...Hello My name is Rafael Garcia, and I want to share with you a little bit about myself. I am a 27-year-old...reactions3comments
