FeaturedCommon Myths & Misconceptions You've Faced...What are some common myths & misconceptions you've faced living with SMA?...reactions5repliesMyths & Misconceptions
Boredom Busters...I can't tell you how many times I've Googled "Things to do in the winter when bored," or "Boredom busters" just to...reactions5comments
Red October...Any sports fan in the Philadelphia area will understand the phrase Red October. For those of you who are not lucky enough...reactionscomments
FeaturedDating with SMA...What has your experience been like while dating with SMA? Do you tend to date others with SMA or have you been...reactions3repliesIntimacy & RelationshipsTips & Advice
Parenting From a Wheelchair...Being a mother is an adventure in itself, but when you add two young children and a wheelchair to the mix, things...reactions1comment
Do you know a solution for those health issues?...Hey there, life with SMA has never been easy, but since 2 years I´m having severe problems and need your advice... It...reactions3repliesSymptomsMental HealthSleep
Honest Look at a Parent’s Heartbreak...The emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease...reactionscomments
How I Find Worth in Caretaking...Taking care of someone can be hard and trying. Especially when it is a 24/7 gig. There are days I wish I...reactionscomments
Vacations & Travel with SMA...A community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before...reactions11replies
Welcomed Support for Caregivers...What kind of support do you find useful as the caregiver of someone with SMA? Who gives you that support and how...reactionsrepliesCaregivingFriends & Family
Large Medical Team Helps a Child With SMA...When our daughter, Jessie was born we were overjoyed. We were unaware of what was in store for my daughter and our...reactionscomments
Living With SMA as a Mom...I am 35 years old. I'm a mum of 3, all by C sections. I have had SMA since I was born...reactions6comments
Sma led dync1h1 mutation ...Hello, I have several dync1h1 mutations and i am looking for expert who can confirm if they are pathogenic (report says acmg...reactions1reply
Some tips for using and purchasing assistive equipment are ___________....Fill in the blank! What is your experience with purchasing assistive equipment? Do you have any fears about using them? Are there...reactions4repliesAssistive EquipmentTips & Advice
My First Wheelchair Seating Clinic...In previous articles, I’ve written about perception. How we are perceived is a big part of ourselves. When I went off to...reactionscomments
Becoming Financially Independent...The other day, I visited the Supplemental Security Income (SSI) office. I had to visit because I now have my first job...reactions2comments
Your Heroes...Tell us about the person who has helped you the most as you've navigated living with SMA. Who has been your hero?...reactionsrepliesCaregivingFriends & FamilyHealthcare Team
Wheelchair Recommendation and Favorite Features...As someone with spinal muscular atrophy, I understand the importance of selecting the correct wheelchair. Not only is it a huge financial...reactions1comment
Personal Heroes...We asked our Patient Leaders to tell us about the person who has helped them the most as they've navigated living with...reactionscomments
Body Image...What concerns do you have about your body image or perception? Is your perception accurate or do you have an image of...reactionsrepliesAwareness
