Coping as a Young Adult With SMA...We asked a couple of our young Health Leaders, Kellie and Jennifer, about the transition from their teenage years to adulthood, how...reactions6comments
Challenges of SMA and Its Progression...Living with a chronic condition like spinal muscular atrophy (SMA) can have significant social and emotional impacts on individuals and their families...reactions1comment
Can Someone Really Predict Life Expectancy?...I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than...reactionscomments
Speech Therapy for Children with SMA...I am a speech pathologist. My daughter had spinal muscular atrophy. One of my daughter’s needs was speech therapy services. Since I...reactionscomments
Complications of Spinal Muscular Atrophy: Urinary Incontinence...Children with spinal muscular atrophy (SMA) have progressive muscle weakness due to defective motor neurons in the spine. This can lead to...
Children and Spinal Muscular Atrophy...Spinal muscular atrophy (SMA) is a long-term progressive disease that causes muscle weakness. This affects each child with SMA differently. Children often...
School Accommodations and SMA...Children with spinal muscular atrophy (SMA) often succeed in school. However, certain physical limitations may prevent them from participating in all academic...
SMA and Health Insurance...People with spinal muscular atrophy (SMA) often face high healthcare costs. These costs usually come from hospital visits, medical equipment, and prescription...
Letting Go of a PCA...Like any other job in this world, being someone’s personal care assistant just isn’t for everyone. But unlike every other job, this...reactions4comments
Mixing Advocacy With Travel in Washington, DC...Guess what I did? I took a trip to Washington, D.C., to advocate for a cure for spinal muscular atrophy (SMA) on...reactionscomments
Disability and Abuse...By definition, abuse is something that inflicts pain or emotional distress on a vulnerable person through verbal or nonverbal acts. Abuse thrives...reactionscomments
The Bully In My Mind...For me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but...reactions4comments
An Open Letter To My Mom, My Caregiver...As Mother’s Day approaches, I find myself reflecting on all the things my mom has done for me since I was diagnosed...reactions2comments
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Genetic Counseling...I was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no...reactions1comment
SpinalMuscularAtrophy.net Giveaway Terms and Conditions...These Official Rules apply to any giveaway (or "Promotion") published on SPINALMUSCULARATROPHY.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Complications of Spinal Muscular Atrophy: Scoliosis...People with spinal muscular atrophy (SMA) experience muscle weakness that gets worse over time (progressive) because of defective motor neurons. In severe...
Support Groups for SMA...Talking to other people living with spinal muscular atrophy (SMA) is a great way to find support. Support groups can provide advice...
Nutrition and Spinal Muscular Atrophy...Proper nutrition is important for everyone, but especially for people with spinal muscular atrophy (SMA). Many people with SMA have low height...
How Common is Spinal Muscular Atrophy?...Spinal muscular atrophy (SMA) is one of the most common genetic conditions that affect children. One in every 6,000 to 10,000 babies...
