The Bully In My Mind...For me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but...reactions4comments
An Open Letter To My Mom, My Caregiver...As Mother’s Day approaches, I find myself reflecting on all the things my mom has done for me since I was diagnosed...reactions2comments
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Genetic Counseling...I was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no...reactions1comment
SpinalMuscularAtrophy.net Giveaway Terms and Conditions...These Official Rules apply to any giveaway (or "Promotion") published on SPINALMUSCULARATROPHY.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Complications of Spinal Muscular Atrophy: Scoliosis...People with spinal muscular atrophy (SMA) experience muscle weakness that gets worse over time (progressive) because of defective motor neurons. In severe...
Support Groups for SMA...Talking to other people living with spinal muscular atrophy (SMA) is a great way to find support. Support groups can provide advice...
Nutrition and Spinal Muscular Atrophy...Proper nutrition is important for everyone, but especially for people with spinal muscular atrophy (SMA). Many people with SMA have low height...
How Common is Spinal Muscular Atrophy?...Spinal muscular atrophy (SMA) is one of the most common genetic conditions that affect children. One in every 6,000 to 10,000 babies...
Accessibility Etiquette...We asked our Health Leaders who live with spinal muscular atrophy: "What needs to make it into an 'accessibility etiquette' guide? What...reactionscomments
Life Expectancy and Prognosis for SMA...The life expectancy and prognosis of spinal muscular atrophy (SMA) vary widely between types. People with the most severe types may only...
Getting Back In the Pool After Surgery With SMA...Having spinal muscular atrophy (SMA) means relying on a powered wheelchair for mobility. While my wheelchairs and assistive gear offer a sense...reactionscomments
Embracing Freedom: Swimming with SMA...As someone with spinal muscular atrophy, swimming has always held a special place in my heart. Ever since I was a child...reactionscomments
Why Are Car Repairs So Expensive?...Maintaining a reliable vehicle is vital for individuals living with spinal muscular atrophy (SMA) to maintain their independence and overall well-being. Unfortunately...reactions1comment
Social Media and Mental Health...Social media can be a game changing tool for anyone, especially people in the SMA and disabled communities. I've chatted about this...reactions4comments
Getting Out Of My Head...I know that I am not alone in this feeling. We ‘SMAers’ are very observant wallflowers. Meaning that we see everything. For...reactions2comments
Succeeding as a Disabled College Student...When it came time to start looking at colleges, there were two major items on my list that had to be checked:...reactionscomments
Finding Disabled Joy...So many of my friends who are disabled have spoken about the magic of being in a room full of people who...reactionscomments
Getting Tips and Support at the 2023 Cure SMA Conference...Last year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely...reactionscomments
Losing My Best Friend...Today my household had to do something that owners of pets dread. We had to make the decision to end our dog’s pain...reactions1comment
