Making Dreams A Reality...How has SMA affected your biggest, wildest dreams? Were you still able to make that dream a reality or did you have...reactionsrepliesCoping
A Village of Healthcare Professionals...We quickly needed a village of professionals. Our daughter, Jessie, was born with spinal muscular atrophy (SMA) back in 1974. We quickly...reactionscomments
Finding Financial Assistance for Treatment...Many illnesses, such as spinal muscular atrophy, come with steep price tags. Once you have a diagnosis, navigating treatment expenses can be...reactionscomments
My Good Days: A Resource for Financial Help...I’ve talked about the “disability tax” in previous articles. You’ll hear people who have a physical disability use this term. It basically...reactions1comment
Resources for Assistance...What non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services)?...reactionsrepliesCost
Navigating School Accommodations for Children With SMA...The United States government has many laws that protect rights to education for children with disabilities. Spinal muscular atrophy (SMA) is considered...reactions1comment
That Hospital Stay and One Nurse in the ICU...In 1974, my wife and myself were frightened when the Pediatric Neurologist diagnosed my daughter, Jessie, with spinal muscular atrophy (SMA) when...reactions3comments
FeaturedThank A Healthcare Professional Discussion Board...Do you have a favorite doctors/specialist? Maybe someone who went above and beyond for you during a hospital stay? Give them a...reactions2repliesHealthcare Team
Finding Halloween...The festive side of the year is around the corner, and that always gets me excited! A key part of living with...reactions2comments
SMA In America: Results from Our 2022 Survey...In our first ever Spinal Muscular Atrophy In America Survey, we collected information from 54 adults living with SMA and 8 caregivers...reactionscomments
Cooking Without Hands...Have you ever had a desire to cook an amazing meal for someone but had a thought, “how would I do that?...reactions2comments
Is this SMA?...Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc...reactions3repliesAwareness
Breaking the SMA Barriers...Everyone has to deal with barriers. When we think of spinal muscular atrophy we probably assume these barriers are physical. I want...reactions1comment
Barriers with SMA...What do you feel are your greatest barriers living with SMA? How do you navigate these barriers? Start the conversation and let...reactionsrepliesMental Health
Helping My Daughter Make Choices and Experience Life...I realized that we, as parents of a child with spinal muscular atrophy (SMA), were trying to do everything possible to meet...reactionscomments
Voting With a Disability: What to Know...Voting is a fundamental American right, but it has special meaning for people with disabilities, like spinal muscular atrophy, or health conditions...reactions1comment
Medical Review Board...The Health Union Medical Review Board is made up of board-certified healthcare professionals with extensive experience in their respective fields. They review...
Making the Best of It...I recently watched a new movie based on a true story about a young man who unexpectedly became a quadriplegic due to...reactions1comment
FeaturedStaying Positive with SMA ...Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....reactions6repliesCopingMental Health
Editorial Team...The Editorial Team works with its Medical Review Board and experienced medical writers to provide Health Union's Community Team with reliable, easy-to-understand...
