Learning, Growing, Healing, Trying...Sometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad...reactionscomments
Dealing With Grief During Festive Seasons...Every year when we come to the festive season (for us in Malaysia it's Hari Raya Aidilfitri), it is the hardest time...reactions1comment
Getting Christmas Sorted with SMA...As a 31-year-old with SMA, Christmas is always pretty exciting. Ever since I was little, I’ve adored the sparkle of December. But...reactions1comment
Healthy Holiday Boundaries...We all just survived a pandemic. That is no small feat! As the holidays come around, we are going to be surrounded...reactionscomments
Myths and Misconceptions About Spinal Muscular Atrophy...Like many rare diseases, there are many misconceptions about spinal muscular atrophy (SMA). Most people are not familiar with SMA until a...
Your Story Matters...All of us have a unique story to share with the world. And whether it’s by writing a book, starting a blog...reactionscomments
What A Small Cold Can Do...In October, my mom caught a little cold during a trip to her doctor's office. She suffered a sore throat, cough, runny...reactionscomments
My Battle With Chronic Pain and SMA...In my life, aches and pains have been constant companions. In my younger years, I chalked them up as part of the...reactions1comment
Jake Saxton...Jake Saxton is a 20-year-old college student studying human resource management at Temple University. He was diagnosed with spinal muscular atrophy type...
Friends That Travel Together, Stay Together...People say travel friendships can last a lifetime. With traveling, it shows how solid your friendships are because you will know how...reactionscomments
Adding Fun to Tiring Doctors Appointments...In general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular...reactions2comments
Thoughtful Christmas Gifts for Wheelchair Users...I cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself...reactionscomments
Awarded an MBE for Disability Advocacy...If I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still...reactions1comment
Radical Inclusivity...Definition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice...reactions1comment
What is Your Definition of Independence?...Living with a disability can make us stubborn in our ways. I know for me it’s the inability to control what my...reactionscomments
5 Tips for Dating with a Disability...The dating landscape with social media and dating apps is not always an ideal way to meet others when you have a...reactions2comments
Let’s Make Flying More Accessible...Everybody deserves to get away and chill by the pool or visit their dream destination. But traveling with a disability can be...reactions3comments
Airline Travel When You Have SMA – Tips, Tricks, and What to Know Before You Go!...Traveling when you have SMA can be a daunting undertaking. Many individuals who have SMA have never flown on an airplane. Air...reactionscomments
Air Travel...My biggest advice for traveling with SMA through airfare is to communicate, communicate, communicate. OVER-communicate. At least for me, I hate feeling...reactionscomments
Adapting Makeup...Makeup for me has always been something I give myself as a gift of self-care. I enjoy doing my makeup every day and...reactionscomments
