Radical Inclusivity...Definition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice...reactions1comment
What is Your Definition of Independence?...Living with a disability can make us stubborn in our ways. I know for me it’s the inability to control what my...reactionscomments
Let’s Make Flying More Accessible...Everybody deserves to get away and chill by the pool or visit their dream destination. But traveling with a disability can be...reactions3comments
Airline Travel When You Have SMA – Tips, Tricks, and What to Know Before You Go!...Traveling when you have SMA can be a daunting undertaking. Many individuals who have SMA have never flown on an airplane. Air...reactionscomments
Air Travel...My biggest advice for traveling with SMA through airfare is to communicate, communicate, communicate. OVER-communicate. At least for me, I hate feeling...reactionscomments
Adapting Makeup...Makeup for me has always been something I give myself as a gift of self-care. I enjoy doing my makeup every day and...reactionscomments
Smart Independence...As an independent disabled adult, one of my fears is that I will be alone with a caregiver and the caregiver will...reactions2comments
Living With SMA...People with spinal muscular atrophy (SMA) face many challenges throughout life. Physical symptoms can lead to emotional and social challenges for children...
Working with SMA ...I have mentioned in a previous article that I have worked full time. After graduating college, I had a hard time finding...reactionscomments
Complications of Spinal Muscular Atrophy: Fractures...People with spinal muscular atrophy (SMA) have muscle weakness because of a defect in their motor neurons. In severe types of SMA...
A Parent's Journey...As a parent, we can remember that day when we heard the news, "Congratulations, you are going to have a baby." From...reactions1comment
Cold Weather Tool Kit Essentials...The anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with...reactions5comments
Six Months With My First Power Chair...It has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric...reactionscomments
Competing In Sports With SMA...My SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one...reactions3comments
Traveling For The Holidays With SMA...The holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know...reactionscomments
Power of the Chair...When people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often...reactions1comment
Patient Assistance Programs for SMA...Affording your spinal muscular atrophy (SMA) drugs and other treatment costs can be challenging. Luckily, there are programs that may be able...reactionscomments
The Benefits of Opening an ABLE Account...Financial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families...reactionscomments
Top Things To Do in NYC That Are Accessible...My mom and I love to travel, and as we live close to the city, New York City, I wanted to share...reactionscomments
ABLE Account Information...Let’s talk about saving money while being on government assistance in the United States. I am on social security disability which is...reactionscomments
