FeaturedStaying Positive with SMA ...Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....reactions6repliesCopingMental Health
Editorial Team...The Editorial Team works with its Medical Review Board and experienced medical writers to provide Health Union's Community Team with reliable, easy-to-understand...
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
My Reactions To Finding Out That My Daughter Had Spinal Muscular Atrophy...My experience with anticipatory grief (AG) began when Jessie was about 3 months old. She was not meeting her developmental goals compared...reactionscomments
Computer Assistive Technology...Symptoms of spinal muscular atrophy (SMA) can make it hard to use technology. Computer assistive devices and strategies can improve access. They...reactionscomments
This is Her Space...Advocacy is part of my daily life. I provide family support to newly diagnosed families, I share Emma’s story as a patient...reactions4comments
The Art of Chewing and Swallowing with SMA...If you’ve lived with spinal muscular atrophy for any length of time you expect to have weakness progress in your body. However...reactions3comments
Being a Parent of a Child with SMA...I have talked about this a few times already. I have also read other parents' points of view on this site. I...reactionscomments
About You: An Author and a Character with SMA...Note: This year's theme for SMA Month was SMA does not define us. For Chaz Hayden, a patient leader for SpinalMuscularAtrophy.net, his...reactions3comments
Modifying Your Home for More Independence...Having an accessible home can help with some of the challenges of living with SMA. It can help with living more independently...reactionscomments
Newborn Genetic Screening for Spinal Muscular Atrophy...Spinal muscular atrophy (SMA) is a rare genetic condition that causes muscle weakness. SMA is caused by a mistake in a specific...reactionscomments
My Life as an Artist, Not SMA, Defines Me...This year's theme for SMA Month was SMA does not define us. For Ainaa Amaili, a patient leader for SpinalMuscularAtrophy.net, her life...reactions3comments
Caring For Our Daughter Born With Spinal Muscular Atrophy: One's Family Approach...We were going to have a baby! My wife Zelda, water had broken that night and off we went to the hospital...reactionscomments
My Spark is Music, Not SMA...This year's theme for SMA Month was SMA does not define us. For Allie Williams, a patient leader for SpinalMuscularAtrophy.net, her life...reactions1comment
Gaming with a Disability...Recently I went on a search to find an accessible hobby that didn’t include technology or staring at a screen. I didn’t...reactions6comments
You are more than someone with SMA. Who are you?...SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is...reactions11repliesAwareness
Jessie’s First Grade Class Learns About Disabilities...The back story: My daughter Jessie, had spinal muscular atrophy [SMA]. She was the first handicapped child to be mainstreamed in our...reactions4comments
FeaturedTeaching Children About Disabilities Discussion Board ...When you were a child, was it difficult to interact with non-disabled children? Did your school help introduce them to your disability?...reactions4repliesDisabilityFriends & FamilyEducation & Schooling
Extra Assistance at School...I was talking to a mom who has a teen with SMA. They were asking me for advice on what kind of...reactions1comment
FeaturedDoctors won’t address my sma...So, I was reading my mri report and it says I have mild to moderate paraspinal musculature atrophy. You can clearly see...reactions3repliesHealthcare TeamSymptomsTesting
