Smart Independence...As an independent disabled adult, one of my fears is that I will be alone with a caregiver and the caregiver will...reactions2comments
Living With SMA...People with spinal muscular atrophy (SMA) face many challenges throughout life. Physical symptoms can lead to emotional and social challenges for children...
Working with SMA ...I have mentioned in a previous article that I have worked full time. After graduating college, I had a hard time finding...reactionscomments
Complications of Spinal Muscular Atrophy: Fractures...People with spinal muscular atrophy (SMA) have muscle weakness because of a defect in their motor neurons. In severe types of SMA...
A Parent's Journey...As a parent, we can remember that day when we heard the news, "Congratulations, you are going to have a baby." From...reactions1comment
Cold Weather Tool Kit Essentials...The anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with...reactions5comments
Six Months With My First Power Chair...It has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric...reactionscomments
Competing In Sports With SMA...My SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one...reactions3comments
Traveling For The Holidays With SMA...The holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know...reactionscomments
Power of the Chair...When people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often...reactions1comment
Patient Assistance Programs for SMA...Affording your spinal muscular atrophy (SMA) drugs and other treatment costs can be challenging. Luckily, there are programs that may be able...reactionscomments
The Benefits of Opening an ABLE Account...Financial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families...reactionscomments
Top Things To Do in NYC That Are Accessible...My mom and I love to travel, and as we live close to the city, New York City, I wanted to share...reactionscomments
ABLE Account Information...Let’s talk about saving money while being on government assistance in the United States. I am on social security disability which is...reactionscomments
Donna Waldrop...Donna was previously a health leader on SpinalMuscularAtrophy.net. Donna Waldrop is a 40-ish-year-old live-in caregiver for her adult best friend living with...
Jennifer Miller-Smith...Jennifer was previously a health leader on SpinalMuscularAtrophy.net. Jennifer is a Mom of 3 with 2 disabled daughters. Her oldest daughter Katie...
Telling Loved Ones About Your Child's SMA Diagnosis...After getting news that your child has a serious illness like spinal muscular atrophy (SMA), you will likely turn to family and...reactionscomments
Navigating School Accommodations for Children With SMA...The United States government has many laws that protect rights to education for children with disabilities. Spinal muscular atrophy (SMA) is considered...reactions1comment
Jessie’s First Grade Class Learns About Disabilities...The back story: My daughter Jessie, had spinal muscular atrophy [SMA]. She was the first handicapped child to be mainstreamed in our...reactions4comments
Why Is Self-Care Important and How Can We Practice It?...Self-care is one of those things we all know we should take care of, but neglect during stressful times. When managing daily...reactionscomments
