Tips for Travel...Whether it's for vacation, business, a chance to visit far-away relatives or friends, or to attend a special event like a friend's...reactionscomments
Grandparents Help Child with SMA Live Life...Zelda's water had broken that night and off we went to the hospital, as planned. So, my wife, my parents, and her...reactionscomments
Shopping for Clothes with a Disability...One of the biggest challenges of living with SMA is buying new clothes, especially pants. For me, it’s not possible to go...reactions2comments
Weight: Freshman 15 to the Covid 19...Today I’m talking about weight. At some point in our lives, most of us deal with weight gain. Back in college, the freshman...reactionscomments
Helpful Government Programs...Depending where you live, your country or state may have different programs that you can access to help you manage disability caused...reactionscomments
Government Programs...What government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with...reactionsrepliesAwarenessCostDisability
SMA Awareness Month 2022...August is Spinal Muscular Atrophy (SMA) Awareness Month! Receiving a diagnosis for spinal muscular atrophy can be a long, frustrating process, leading...reactionscomments
SMA Awareness Month Discussion Board: What do you wish others knew about SMA?...If there was one thing you could tell the world about SMA, what would it be?...reactions6repliesAwarenessMyths & Misconceptions
Accessible Housing Tips...Have you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you...reactionsrepliesAssistive EquipmentTips & Advice
Personal Care Assistants...Many people with spinal muscular atrophy hire a personal care assistant to provide a wide range of tasks, from personal care, meal...reactionscomments
Traveling and SMA...Traveling has always been a passion of mine. When I was younger I was fortunate enough to travel to Costa Rica, Guatemala...reactionscomments
Living My Life as a Computer...Hello, everybody! You can call me Smurf because that was given to me from my friends that I have met over the...reactions6comments
Preparing Emotionally with a Child with Spinal Muscular Atrophy...It is 1974, and my wife was pregnant. We were not expecting twins However, we were blessed with twins. One of the...reactionscomments
Tips for Accessible Housing...We asked our patient leaders: What housing tips do you have for someone with spinal muscular atrophy (SMA)? Have you taken steps...reactionscomments
Finding a Disability Friendly Hobby...Recently I felt like I was stuck in a rut with my hobbies or activities to unwind. It seemed like I was...reactions6comments
Raising a Girl...I have lived a life of always confirming my own personal safety. Once I had a child, the awareness grew exponentially. My...reactions2comments
Maintaining Friends While Living With a Disability...This topic recently came up while talking with other writers from this page. I am very outgoing and have always loved being...reactions3comments
Taking Care of Myself as Mike’s Full-Time Caregiver...In March 2020 I became Mike’s full-time caregiver. This was a big decision and one we discussed for a long time. It...reactionscomments
Air Travel...My biggest advice for traveling with SMA through airfare is to communicate, communicate, communicate. OVER-communicate. At least for me, I hate feeling...reactionscomments
Tough Days...Some mornings you wake up and you just know the day is going to be tough. You want to stay in bed...reactions1comment
