Donna Waldrop...Donna was previously a health leader on SpinalMuscularAtrophy.net. Donna Waldrop is a 40-ish-year-old live-in caregiver for her adult best friend living with...
Jennifer Miller-Smith...Jennifer was previously a health leader on SpinalMuscularAtrophy.net. Jennifer is a Mom of 3 with 2 disabled daughters. Her oldest daughter Katie...
Telling Loved Ones About Your Child's SMA Diagnosis...After getting news that your child has a serious illness like spinal muscular atrophy (SMA), you will likely turn to family and...reactionscomments
Jessie’s First Grade Class Learns About Disabilities...The back story: My daughter Jessie, had spinal muscular atrophy [SMA]. She was the first handicapped child to be mainstreamed in our...reactions4comments
Why Is Self-Care Important and How Can We Practice It?...Self-care is one of those things we all know we should take care of, but neglect during stressful times. When managing daily...reactionscomments
For Parents: Advice on Talking to Young Children About SMA...It can be challenging as a parent to tackle difficult conversations with children and young adults about spinal muscular atrophy or disabilities...reactionscomments
Adaptive Fashion and the Double Take Fashion Show...Hello everyone! Today, since it's officially June as I write this, and the warm weather is here, (my favorite season!) I wanted...reactionscomments
Helping My Daughter Make Choices and Experience Life...I realized that we, as parents of a child with spinal muscular atrophy (SMA), were trying to do everything possible to meet...reactionscomments
My Reactions To Finding Out That My Daughter Had Spinal Muscular Atrophy...My experience with anticipatory grief (AG) began when Jessie was about 3 months old. She was not meeting her developmental goals compared...reactionscomments
Maryalice Noon...Maryalice was previously a health leader on SpinalMuscularAtrophy.net. Maryalice and her husband Dennis raised 3 children: Mike, Dan, and Ali. Their oldest...
Elizabeth De La Cruz-Noland...Elizabeth was previously a health leader on SpinalMuscularAtrophy.net. Elizabeth De La Cruz-Noland is a mom of two. Her second child, Elijah, was...
Chaz Hayden...Chaz was previously a health leader on SpinalMuscularAtrophy.net. Chaz Hayden grew up in New Jersey and was diagnosed with spinal muscular atrophy...
Erin Courteau...Erin was previously a health leader on SpinalMuscularAtrophy.net. Erin Courteau is mother to a 4-year-old with type-1 spinal muscular atrophy. Her daughter...
Just Let Me Return This...Home delivery of groceries and online shopping became a normal occurrence for many people during the COVID-19 pandemic. As someone with mobility...reactions1comment
Interviewing for a Job When You Have a Disability...Interviewing for a job can be a daunting task for anyone regardless of how physically or mentally capable you are. But when...reactions1comment
Preparing Emotionally with a Child with Spinal Muscular Atrophy...It is 1974, and my wife was pregnant. We were not expecting twins However, we were blessed with twins. One of the...reactionscomments
Large Medical Team Helps a Child With SMA...When our daughter, Jessie was born we were overjoyed. We were unaware of what was in store for my daughter and our...reactionscomments
Frequently Asked Questions (FAQs) About Spinal Muscular Atrophy...Whether you are living with spinal muscular atrophy (SMA) or a caregiver for someone with SMA, here is a guide to the...reactionscomments
Jennifer Greer...Jennifer Greer is a vibrant 28-year-old woman who thrives despite Spinal Muscular Atrophy Type 2. Diagnosed at just 18 months old, she’s...
Talking to Others About SMA...What are your tips for talking to your family and friends about SMA? What are your tips for talking to your coworkers...reactions1comment
