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...Today I’m talking about weight. At some point in our lives, most of us deal with weight gain. Back in college, the freshman 15 found me and during Covid weight gain...

...Depending where you live, your country or state may have different programs that you can access to help you manage disability caused by spinal muscular atrophy. We asked our patient...

...The SMA Awareness Month 2022 Giveaway is now closed. Thank you for your interest! August is Spinal Muscular Atrophy (SMA) Awareness Month. About 1 in 6,000 to 10,000 babies worldwide...

...August is Spinal Muscular Atrophy (SMA) Awareness Month! Receiving a diagnosis for spinal muscular atrophy can be a long, frustrating process, leading to many lifestyle changes. Once a person is...

...Many people with spinal muscular atrophy hire a personal care assistant to provide a wide range of tasks, from personal care, meal preparation and feeding, to transportation and more. For...

...Traveling has always been a passion of mine. When I was younger I was fortunate enough to travel to Costa Rica, Guatemala, Mexico, Cuba, Brazil, India, Vietnam, Malaysia, China, Japan...

...It is 1974, and my wife was pregnant. We were not expecting twins However, we were blessed with twins. One of the twins, my daughter, Jessie was born with Spinal...

...We asked our patient leaders: What housing tips do you have for someone with spinal muscular atrophy (SMA)? Have you taken steps to make your house more accessible? If so...

...Recently I felt like I was stuck in a rut with my hobbies or activities to unwind. It seemed like I was either on my computer or watching TV. And...

...I have lived a life of always confirming my own personal safety.  Once I had a child, the awareness grew exponentially. My first experience of personal awareness started in my...

...This topic recently came up while talking with other writers from this page. I am very outgoing and have always loved being out doing things. Well, that hasn’t always been...

...In March 2020 I became Mike’s full-time caregiver.  This was a big decision and one we discussed for a long time. It was the beginning of the pandemic and Mike’s...

...My biggest advice for traveling with SMA through airfare is to communicate, communicate, communicate. OVER-communicate. At least for me, I hate feeling like a burden and like I need to...

...Some mornings you wake up and you just know the day is going to be tough. You want to stay in bed, in the warm comfort of your home, and...

...As I’ve gotten older and my disease, spinal muscular atrophy, has progressed a little more, eating out started to become more of a daunting task. However, it’s really important to...

...Summertime is an interesting part of the year for people with disabilities, especially children. Warm weather seems great, but really it leads people to inaccessible places like the beach, going...