Glossary of SMA Terms...Progressive weakness and wasting away of muscles. In SMA, it happens because of a genetic mutation leading to a loss of nerves...
Medicare Denials and Wonderful Nonprofits...I recently wrote about my first wheelchair seating clinic experience. Since I wrote that article I was denied by Medicare for the...reactions1comment
ABLE Accounts...Living on disability income often means living at or below the poverty line. Qualifying for assistance requires having limited resources. That reality...
Define Love...Define love. It would be a broader definition for everyone. As I moved into the adulthood phase I started to get involved...reactionscomments
Therapy and Mental Health with SMA...Warning: This post discusses my experience with mental health including anxiety and depression. Reader discretion is advised. I wanted to discuss my...reactions2comments
Living With a Disability: Movie Recommendations...We asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some...reactions2comments
An Accessible Cruise Vacation...I just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what...reactions3comments
Dressing Room Experience as a Wheelchair User: Tips and Personal Insights...Trying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if...reactionscomments
Mental Health Awareness Month...May was designated National Mental Health Awareness Month in 1949 by the United States Congress due to the increased number of veterans...reactionscomments
The Promise of Treatment...Our family journey began when Mike was five years old. After a barrage of testing and doctor appointments, we were given the...reactionscomments
The Mom In The Wheelchair...Recently, I had an experience I didn’t know I desperately needed. I went to volunteer in my daughter’s kindergarten classroom. I was...reactions1comment
Medical Review Board...The Health Union Medical Review Board is made up of board-certified healthcare professionals with extensive experience in their respective fields. They review...
Disability Does Not Make You Immune to Hardship...Recently, I have had a huge life transition and not a positive one. I feel society often thinks that disabled individuals do...reactions1comment
Patient Lifts...Having the inability to raise oneself out of a power chair to go to the bathroom or to the bed can be...reactionscomments
Traveling With SMA: What to Consider...Traveling is a great way to relax, learn about other cultures, and bond with your family. People with spinal muscular atrophy (SMA)...reactionscomments
Jessie's Bucket List - What is on Yours?...Everyone has a bucket list. A bucket list is something you want to do or experience before you die. In 1989, Jessie...reactions1comment
Disability Costs Too Much...I often get told how I should be grateful because the government pays for my spinal muscular atrophy treatments, or my durable...reactions1comment
Empty Nest Again...As any typical parent will experience the day when your last child leaves the childhood home. At this point we are called...reactionscomments
If You Fall, I’m Going Down With You...My sweet child, she’s fearless. She’s put me at max speed. She’s "Daddy look at me!" She’s full of constant laughter and...reactions1comment
Body Perception...One of my missions is giving teenagers the confidence that life isn’t all doom and gloom when dealing with a disability. Back...reactions1comment
