Van-Accessible Parking...Mike usually doesn’t like to use disabled parking spaces. There are different types of disabled parking spaces: regular and van-accessible. I’ve learned...reactions3comments
Celebrating the Holidays and Special Occasions...We asked our patient leaders about how they celebrate the holidays: Are there any special accommodations they and their family/friends have adopted...reactionscomments
Where I Got Stuck, and Other Stories...We asked our Patient Leaders if they have any stories (humorous or otherwise) that only someone else with SMA or a disability...reactionscomments
Sample Page...This is an example page. It's different from a blog post because it will stay in one place and will show up...
Boredom Busters...I can't tell you how many times I've Googled "Things to do in the winter when bored," or "Boredom busters" just to...reactions5comments
Living With SMA as a Mom...I am 35 years old. I'm a mum of 3, all by C sections. I have had SMA since I was born...reactions6comments
My First Wheelchair Seating Clinic...In previous articles, I’ve written about perception. How we are perceived is a big part of ourselves. When I went off to...reactionscomments
Becoming Financially Independent...The other day, I visited the Supplemental Security Income (SSI) office. I had to visit because I now have my first job...reactions2comments
Personal Heroes...We asked our Patient Leaders to tell us about the person who has helped them the most as they've navigated living with...reactionscomments
Weight Management and Spinal Muscular Atrophy - Take Our Quick Polls...For people living with chronic health conditions, managing weight can be a particularly challenging task. Balancing the demands of managing symptoms and...reactionscomments
Rare Disease Day...The last day of February is Rare Disease Day! To celebrate and acknowledge this important day in the rare disease community, we...reactionscomments
Son With SMA BICD2 Gene Mutation...My son was born with dislocated hips and deformed feet, its been a long road of appointments, tests etc. for diagnosis. This...reactions2comments
Community Rules...These rules apply to all activity on SpinalMuscularAtrophy.net or Health Union operated properties, including but not limited to the website, SpinalMuscularAtrophy.net Facebook...
How Do You Handle Cold Weather?...We asked our Patient Leaders here at SpinalMuscularAtrophy.net, "How do you handle colder weather?" Does cold weather impact their SMA symptoms? Do...reactionscomments
An Overview of Disability Rights Laws...The US government has many laws that protect and support rights for disabled persons. People with spinal muscular atrophy (SMA) have certain...reactionscomments
Unlearning Ingrained Ableism...I'll be honest here- I didn't grow up around anyone with a disability. Growing up, classrooms in my school were segregated. I...reactions1comment
Cold and Flu Season...The time of year is upon us when the temps are dropping, the holidays are approaching and the terrifying “F” word is...reactions1comment
Memories of the Labor Day Telethon...I’m sure we all can remember that Labor Day meant watching the Jerry Lewis’s Muscular Dystrophy Telethon. It was always an emotional...reactionscomments
Disability Benefits...Conditions like spinal muscular atrophy may prevent you from working, as well as be expensive to treat. Getting approved for disability benefits...reactionscomments
