The Odd Mom Out...I had SMA type 2 and became a mother at the age of 25. I then became a mother for a second time only 20 months later. Parenting can be...reactionscomments
Tips for Finding Healthcare Providers...It can be difficult to find a provider who checks all the right boxes. A good relationship and someone who you can trust is really important to feel in control...reactions1comment
I Stopped Taking Evrysdi...When SMA treatments first became available, I honestly wasn’t sure how I felt. At the time it was just Spinraza which I never tried due to other medical issues and...reactionscomments
The Frustrations of Broken Equipment...When living with a disability like spinal muscular atrophy, we heavily rely on equipment that gives us our independence. This freedom is wonderful until it breaks. I don’t know about...reactions2comments
The Joy of the MDA Summer Camp...I think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a...reactionscomments
Day in the Life Without Your PCA...I am coming up on my 12th year of using a personal care assistant (PCA), who isn't a personal relative. There are pros and cons to using a PCA in...reactionscomments
Suicide Prevention...If you or someone you know is in crisis or considering suicide, please contact the 988 Suicide & Crisis Lifeline. Call or text 988, call 1-800-273-TALK (8255), or use the...
Coping With Mental Health: Psychotherapy (Talk Therapy)...Psychotherapy is also known as talk therapy, counseling, or simply therapy. Psychotherapy is used to help with a wide range of mental health conditions or challenges. Therapy sessions can be...
Coping With Mental Health: Medications...Treating mental health conditions with prescription drugs is common. About 16 percent of American adults take medicine for a mental health condition. It is not necessary to suffer in silence...
Complementary and Integrative Health...Complementary therapies and an integrative health approach are often used to treat mental health conditions. Complementary therapies include nontraditional therapies – such as acupuncture, meditation, and yoga – that are...
Essential Items to Manage SMA...Living with spinal muscular atrophy takes a lot of preparation and planning ahead. We reached out to our team of advocates here at SpinalMuscularAtrophy.net to find out what they always...reactions1comment
Mental Health Myths and Facts...There are many myths and misconceptions about mental health. Because of the stigma around mental health conditions, it is important to know the facts. This article aims to dispel these...
General Mental Health Resources...Living with a mental health condition may pose many challenges. It requires coping, finding treatment, and managing the impact of the condition on family, friendships, and work. Stigma can make...
What Is Mental Health?...Mental health is the range of thoughts, emotions, and behaviors that affect your well-being and how you relate to others. Just like good physical health, good mental health is vital...
Mental Health Month...May is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your mental health? Share your experience with managing mental health with our spinal muscular...reactionsrepliesCopingMental HealthTips & Advice
Staying Mentally Healthy...I’m in my mid 40’s and I find it encouraging that mental health has become more out in the open. I know living with spinal muscular atrophy has probably made...reactionscomments
Dealing with Changes in SMA...Spinal muscular atrophy has a host of challenges we all deal with at some stage. While all of our journeys with SMA are very different, I have always found that...reactionscomments
The First Time Pushing My Son in a Wheelchair...Our son was diagnosed with a neuromuscular disease at the age of 5. At that time the name given for his condition wasn’t the same as his final diagnosis. We...reactionscomments
Comparing Spinraza and Evrysdi: Things to Consider...If you are taking Spinraza® (nusinersen) for spinal muscular atrophy (SMA), then you may be curious about Evrysdi® (risdiplam). Both therapies are available in the United States, but there are...reactionscomments
Mental Health with SMA – A Cellphone Analogy...The best way I can describe living with a chronic disease like SMA is that I am a cellphone and my disease is all of the open windows in the...reactions3comments
