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...Zelda's water had broken that night and off we went to the hospital, as planned. So, my wife, my parents, and her...

...Life consists of transitions both large and small. One could argue that transitions are good and bad. I would argue that life...

...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...

...I wrote an article a while back, “Staying Mentally Healthy.” In that article, I attributed a lot of my mental toughness to...

...My daughter, who had spinal muscular atrophy, was mainstreamed in a regular classroom throughout her school years. We lived in a semi-affluent...

...I have talked about this a few times already. I have also read other parents' points of view on this site.  I...

...Many people with spinal muscular atrophy hire a personal care assistant to provide a wide range of tasks, from personal care, meal...

...That has been the question for our family for 39 years. I’m sure every parent asks themselves that often. My experience is...

...Jessie and her brother were born twins. It is important to realize that she was diagnosed with spinal muscular atrophy (SMA) at...

...Since I was a little girl I dreamt of the day that I would “walk” down the aisle on my big day...

...We quickly needed a village of professionals. Our daughter, Jessie, was born with spinal muscular atrophy (SMA) back in 1974. We quickly...

...Many illnesses, such as spinal muscular atrophy, come with steep price tags. Once you have a diagnosis, navigating treatment expenses can be...

...I’ve talked about the “disability tax” in previous articles. You’ll hear people who have a physical disability use this term. It basically...

...In 1974, my wife and myself were frightened when the Pediatric Neurologist diagnosed my daughter, Jessie, with spinal muscular atrophy (SMA) when...

...The festive side of the year is around the corner, and that always gets me excited! A key part of living with...

...In our first ever Spinal Muscular Atrophy In America Survey, we collected information from 54 adults living with SMA and 8 caregivers...

...Everyone has to deal with barriers. When we think of spinal muscular atrophy we probably assume these barriers are physical. I want...

...Voting is a fundamental American right, but it has special meaning for people with disabilities, like spinal muscular atrophy, or health conditions...