Mental Health with SMA – A Cellphone Analogy...The best way I can describe living with a chronic disease like SMA is that I am a cellphone and my disease...reactions3comments
Advice: Younger patients with SMA...What advice would you tell your younger self? Are there things you wish someone would've told you?...reactionsrepliesTips & Advice
Successful Intubation and Anesthesia...Every two years I have to get minor outpatient surgery to change my peg g-tube. This unfortunately has to be performed in...reactionscomments
Jennifer Miller-Smith...Jennifer was previously a health leader on SpinalMuscularAtrophy.net. Jennifer is a Mom of 3 with 2 disabled daughters. Her oldest daughter Katie...
Best Date Ideas for Interabled Couples...I’m a firm believer that dating your spouse is equally as important when you’re 5 or 10 years into marriage than it...reactionscomments
Advice for Younger People with SMA...We asked our team of advocates: What advice do you have for younger people with SMA?Allie: Learn how to adapt what you...reactions2comments
Speech Therapy for Children with SMA...I am a speech pathologist. My daughter had spinal muscular atrophy. One of my daughter’s needs was speech therapy services. Since I...reactionscomments
SpinalMuscularAtrophy.net Giveaway Terms and Conditions...These Official Rules apply to any giveaway (or "Promotion") published on SPINALMUSCULARATROPHY.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
What is Your Definition of Independence?...Living with a disability can make us stubborn in our ways. I know for me it’s the inability to control what my...reactionscomments
Early Education Obstacles...Growing up, it seemed like my parents were always fighting with the school district about something. Most of the challenges I faced...reactions1comment
What Does It Mean to Be a Silent Carrier for SMA?...Spinal muscular atrophy (SMA) is a rare genetic disorder passed from parents to their children. SMA affects the spinal nerves by causing...reactionscomments
Everyday Life...For our firstborn son, the first five years of his life were pretty much routine. We were oblivious to any health problems...reactionscomments
Surround Yourself With the Right People...Having the right people around you in life is so vital. Especially in a world where so much is said online, and...reactionscomments
Qualities of a Good SMA Specialist...When it comes to finding a specialist for spinal muscular atrophy, there are many different factors that come into play. Is the...reactionscomments
Patronizing Comments...I was on a Zoom call with other people who were disabled. One of the moderators who wasn’t disabled made a comment...reactions2comments
SMA Treatment Advancements...We asked our team of advocates: What have advancements in treatment for spinal muscular atrophy meant to you?Allie: The celebration of life...reactionscomments
Navigating Early Intervention and Education...Our daughter was diagnosed with spinal muscular atrophy (SMA) at six months old. The doctor told my wife and me that our...reactionscomments
Challenges with SMA Treatments...We asked our team of advocates: What challenges have you faced around SMA treatment options?Allie: Due to how the approval of the...reactionscomments
When Your Equipment Breaks...My worst nightmare is the thought of any of my equipment breaking at a time when I need it the most. Whether...reactionscomments
Take the Health and Media Habits Survey!...The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
