Interabled Relationships are Just Like Any Other Relationship...Love knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled...reactionscomments
Complications of Spinal Muscular Atrophy...Muscle weakness is progressive in the major types of spinal muscular atrophy (SMA). This means that over time, muscles become weaker. As...
Curious About How Others Manage SMA? Share Your Experience in Our Polls...Navigating life with Spinal Muscular Atrophy (SMA) encompasses a myriad of challenges and triumphs, particularly concerning treatment experiences, personal relationships, and quality...reactionscomments
Evrysdi™ (risdiplam)...In 2020, the US Food and Drug Administration (FDA) approved Evrysdi™ (risdiplam) to treat adults and children over 2 months old with...
General Mental Health Resources...Living with a mental health condition may pose many challenges. It requires coping, finding treatment, and managing the impact of the condition...
Anxious When I Am Alone...I was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to...reactions7comments
Embracing The Challenges...I had the opportunity to participate in a video production for Rare Disease Day 2025, and it was a truly wonderful experience...reactions1comment
Allie Williams...Allie Williams is a 44-year-old woman with spinal muscular atrophy type 2. She was diagnosed at age 18 months, and her parents...
Making Medical Care More Accessible: 5 Simple Steps to Get It Right...If you’ve ever felt frustrated during a doctor’s visit, you’re not alone. For many of us with disabilities, those visits can sometimes...reactions1comment
Navigating Life Decisions with SMA...A few weeks ago, I went in for my routine pulmonary checkup. These appointments happen every six to twelve months because of...reactions4comments
Changing My BiPap Machine...From childhood onward, change has been a constant challenge for me. Every time I needed a new wheelchair or medical device, anxiety...reactionscomments
Help Center...You’ve come to the right place! Get answers to the most frequently asked questions about the inner workings of SpinalMuscularAtrophy.net, as well...
Best Experience Ever...I was thrilled to be nominated as one of the finalists for the Women of the Future Award - Asia. The experience...reactionscomments
Holiday Season Blues...The holiday season, with its festive lights and warm gatherings, often evokes a bittersweet feeling within me. Maybe it's because my birthday...reactions3comments
My Spark is Music, Not SMA...This year's theme for SMA Month was SMA does not define us. For Allie Williams, a patient leader for SpinalMuscularAtrophy.net, her life...reactions1comment
Sports and Recreation: Finding the Right Fit...Different types of SMA come with different physical abilities. Some people have a mild form of the illness and can walk. Others...reactionscomments
Mental Health with SMA – A Cellphone Analogy...The best way I can describe living with a chronic disease like SMA is that I am a cellphone and my disease...reactions3comments
Challenges with SMA Treatments...We asked our team of advocates: What challenges have you faced around SMA treatment options?Allie: Due to how the approval of the...reactionscomments
Overcoming Obstacles From Painting To The Field...Navigating the challenges associated with neurodegenerative conditions has always been an arduous journey, filled with ups and downs. Living with spinal muscular...reactions1comment
