Adaptive Sports & Hobbies...What are some of your favorite adaptive sports or hobbies? How have you really made them something you love and enjoy? Share...reactionsreplies
Learning, Growing, Healing, Trying...Sometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad...reactionscomments
Traveling For The Holidays With SMA...The holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know...reactionscomments
Competing In Sports With SMA...My SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one...reactions3comments
Raising Awareness About Early Diagnosis and Immediate Treatment...As someone living with spinal muscular atrophy (SMA), I know firsthand the challenges and triumphs that come with this condition. That's why...reactions1comment
SMA 3 with handweakness ...Hello My son started developing a weak grip about 16 months ago . He said when he was lifting weights at rowing...reactions6replies
Finding Kindness ...Do you find that others are easily willing to help you after they notice that you're in a wheelchair? If you've experienced...reactionsrepliesAwareness
Power of the Chair...When people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often...reactions1comment
Helping Others Helps Me...Living with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some...reactionscomments
ABLE Savings Accounts...Do you know what an ABLE account is? Do you have experiencing opening one/contributing to one for your own expenses of living...reactionsrepliesTips & Advice
The Benefits of Opening an ABLE Account...Financial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families...reactionscomments
Top Things To Do in NYC That Are Accessible...My mom and I love to travel, and as we live close to the city, New York City, I wanted to share...reactionscomments
Embracing Independence: My Journey with Incontinence...Growing up with spinal muscular atrophy (SMA) and relying on a wheelchair, my daily life was an intricate dance of navigating the...reactions2comments
Just Let Me Return This...Home delivery of groceries and online shopping became a normal occurrence for many people during the COVID-19 pandemic. As someone with mobility...reactions1comment
How do you find balance?...When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental...reactions5replies
How to get up from ground after falling?...Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and...reactions3repliesAssistive EquipmentTips & AdviceTravel
Balancing Life When You Are Ill...Life with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal...reactions2comments
Jennifer Greer...Jennifer Greer is a vibrant 28-year-old woman who thrives despite Spinal Muscular Atrophy Type 2. Diagnosed at just 18 months old, she’s...
Standing my ground ...Hello everyone! I recently wrote an article that I'm waiting to get published all about standing my ground. I've gotten better at...reactions1replyMental Health
Talking to Others About SMA...What are your tips for talking to your family and friends about SMA? What are your tips for talking to your coworkers...reactions1comment
