Competing In Sports With SMA...My SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one day, my twin sister, Rachel, began walking up...reactions3comments
Raising Awareness About Early Diagnosis and Immediate Treatment...As someone living with spinal muscular atrophy (SMA), I know firsthand the challenges and triumphs that come with this condition. That's why I'm writing to emphasize the importance of early...reactions1comment
SMA 3 with handweakness ...Hello My son started developing a weak grip about 16 months ago . He said when he was lifting weights at rowing training he couldn’t get a grip and his...reactions6replies
Finding Kindness ...Do you find that others are easily willing to help you after they notice that you're in a wheelchair? If you've experienced the opposite, how have you handled situations where...reactionsrepliesAwareness
Power of the Chair...When people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often strangers extend their hands to hold open doors...reactions1comment
Helping Others Helps Me...Living with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some life lessons about what is important to me. ...reactionscomments
ABLE Savings Accounts...Do you know what an ABLE account is? Do you have experiencing opening one/contributing to one for your own expenses of living with a disability? Share with our SMA community!...reactionsrepliesTips & Advice
The Benefits of Opening an ABLE Account...Financial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families, it comes with an added layer of complexity...reactionscomments
Top Things To Do in NYC That Are Accessible...My mom and I love to travel, and as we live close to the city, New York City, I wanted to share some of my favorite things to do and...reactionscomments
Embracing Independence: My Journey with Incontinence...Growing up with spinal muscular atrophy (SMA) and relying on a wheelchair, my daily life was an intricate dance of navigating the challenges that most people never even consider. One...reactions2comments
Just Let Me Return This...Home delivery of groceries and online shopping became a normal occurrence for many people during the COVID-19 pandemic. As someone with mobility issues because of my spinal muscular atrophy, my...reactions1comment
How do you find balance?...When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental health? Do you find it difficult to balance...reactions5replies
How to get up from ground after falling?...Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and roaming about because if I fall down I...reactions3repliesAssistive EquipmentTips & AdviceTravel
Balancing Life When You Are Ill...Life with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal muscular atrophy is something we all focus on...reactions2comments
Jennifer Greer...Jennifer Greer is a vibrant 28-year-old woman who thrives despite Spinal Muscular Atrophy Type 2. Diagnosed at just 18 months old, she’s been navigating life from her power wheelchair since...
Standing my ground ...Hello everyone! I recently wrote an article that I'm waiting to get published all about standing my ground. I've gotten better at boundaries (even though I feel the guilt sometimes...reactions1replyMental Health
Talking to Others About SMA...What are your tips for talking to your family and friends about SMA? What are your tips for talking to your coworkers or casual friends about SMA? Mike: This is...reactions1comment
Getting Tips and Support at the 2023 Cure SMA Conference...Last year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely devastated, so to finally be able to go...reactionscomments
Commode accessories...Since I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...reactions11repliesAssistive EquipmentTravelTips & Advice
How to Maintain Privacy with Around-the-Clock Care at Home...The other day I was in my home observing the business. I had two caregivers shuffling through my bedroom and kitchen, kids running around and a spouse working. I simply...reactionscomments
