Adding Fun to Tiring Doctors Appointments...In general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular atrophy (SMA), we have a bunch of doctors...reactions2comments
Thoughtful Christmas Gifts for Wheelchair Users...I cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself wanting to give practical yet creative ideas that...reactionscomments
First Grade-How My Advocacy Started...I have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went to a regular school for first grade way...reactionscomments
Acts of Kindness...Have you experienced radical kindness or inclusivity recently? Let's share positive stories with our community!...reactions1reply
Awarded an MBE for Disability Advocacy...If I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still several weeks left! I live in the UK...reactions1comment
Radical Inclusivity...Definition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice or policy of providing equal access to opportunities...reactions1comment
What's in your winter essentials tool kit?...Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...reactions4repliesTips & Advice
Cold Weather Tool Kit Essentials...The anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with loved ones. However, for those of us living...reactions5comments
Parking Lot Mishaps: The Wheelchair Edition...We've all witnessed that mom clutching her child's hand like it's a lifeline as they navigate a chaotic parking lot. This could be an accident waiting to happen for anyone...reactions2comments
Pros and Cons of Power Chairs...Are you new to using a power chair, or have you used one for a while? What are some things you love and some things you dislike about using a...reactions1replyAssistive Equipment
Jake Saxton...Jake Saxton is a 20-year-old college student studying human resource management at Temple University. He was diagnosed with spinal muscular atrophy type 3 at the early age of 2 years...
Six Months With My First Power Chair...It has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric scooter to get around. The biggest reason for...reactionscomments
Dealing With Grief During Festive Seasons...Every year when we come to the festive season (for us in Malaysia it's Hari Raya Aidilfitri), it is the hardest time for me. Not just for me, but also...reactions1comment
Diagnosis Discussion Board...When were you, or your loved one diagnosed with spinal muscular atrophy? What was the treatment journey like? Were doctors skeptical of another disease, or did they know it was...reactionsreplies
Adaptive Sports & Hobbies...What are some of your favorite adaptive sports or hobbies? How have you really made them something you love and enjoy? Share with our community....reactionsreplies
Learning, Growing, Healing, Trying...Sometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad to rest and will trigger my depression if...reactionscomments
Traveling For The Holidays With SMA...The holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know I am! I’m currently counting down the days...reactionscomments
Competing In Sports With SMA...My SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one day, my twin sister, Rachel, began walking up...reactions3comments
Raising Awareness About Early Diagnosis and Immediate Treatment...As someone living with spinal muscular atrophy (SMA), I know firsthand the challenges and triumphs that come with this condition. That's why I'm writing to emphasize the importance of early...reactions1comment
SMA 3 with handweakness ...Hello My son started developing a weak grip about 16 months ago . He said when he was lifting weights at rowing training he couldn’t get a grip and his...reactions6replies
