New Year - New Me?...I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away...reactionscomments
Friends That Travel Together, Stay Together...People say travel friendships can last a lifetime. With traveling, it shows how solid your friendships are because you will know how...reactionscomments
Getting Ready in the Morning...Getting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and...reactionscomments
Things I Wish People Knew...Today I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want...reactions2comments
Planning a Family With SMA: Things to Consider...If you have a child with spinal muscular atrophy (SMA) or are a carrier of the SMA gene, you face some serious...reactionscomments
Holidays with SMA...Are there any special accommodations you and you family/friends have adopted to make special occasions easier? We'd love to hear about how...reactions1reply
Adding Fun to Tiring Doctors Appointments...In general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular...reactions2comments
Thoughtful Christmas Gifts for Wheelchair Users...I cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself...reactionscomments
First Grade-How My Advocacy Started...I have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went...reactionscomments
Acts of Kindness...Have you experienced radical kindness or inclusivity recently? Let's share positive stories with our community!...reactions1reply
Awarded an MBE for Disability Advocacy...If I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still...reactions1comment
Radical Inclusivity...Definition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice...reactions1comment
What's in your winter essentials tool kit?...Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...reactions4repliesTips & Advice
Cold Weather Tool Kit Essentials...The anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with...reactions5comments
Parking Lot Mishaps: The Wheelchair Edition...We've all witnessed that mom clutching her child's hand like it's a lifeline as they navigate a chaotic parking lot. This could...reactions2comments
Pros and Cons of Power Chairs...Are you new to using a power chair, or have you used one for a while? What are some things you love...reactions1replyAssistive Equipment
Jake Saxton...Jake Saxton is a 20-year-old college student studying human resource management at Temple University. He was diagnosed with spinal muscular atrophy type...
Six Months With My First Power Chair...It has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric...reactionscomments
Dealing With Grief During Festive Seasons...Every year when we come to the festive season (for us in Malaysia it's Hari Raya Aidilfitri), it is the hardest time...reactions1comment
Diagnosis Discussion Board...When were you, or your loved one diagnosed with spinal muscular atrophy? What was the treatment journey like? Were doctors skeptical of...reactionsreplies
