Thriving With SMA...If you live with SMA, then you know the ‘waiting for the other shoe to drop’ mentality. I lived there for a...reactionscomments
SMA Assistive Equipment...Muscle weakness because of spinal muscular atrophy (SMA) can make daily tasks difficult. How motor function and independence are affected depends on...
Needing My Husband's Help in a Public Restroom...I can honestly say some of my funnier moments coping with spinal muscular atrophy have come from having to use public restrooms...reactions1comment
Tips on Dating with a Disability...I know every person‘s story is different, but the common denominator is the desire to be loved in most people's lives. As...reactionscomments
Eating Out...As I’ve gotten older and my disease, spinal muscular atrophy, has progressed a little more, eating out started to become more of...reactionscomments
The Art of Chewing and Swallowing with SMA...If you’ve lived with spinal muscular atrophy for any length of time you expect to have weakness progress in your body. However...reactions3comments
Wheelchair Accessible Seating Hacks...Who has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years...reactions3comments
Preparing For Takeoff...Over the course of the last 5 years, I have had the opportunity to fly around the country. It had been some...reactionscomments
5 Disability Tips for Attending Large Venue Events...Who doesn't like going to a concert, performance, or sporting event? The problem is, it's not always easy to attend events at...reactionscomments
Getting Wheelchair Accessible Concert Tickets...If you’ve ever lost out on accessible/ADA tickets to your favorite band or musician, today is your lucky day because I am...reactionscomments
Grieving Over a Spoon and Fork...Who would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us...reactions1comment
Cooking Without Hands...Have you ever had a desire to cook an amazing meal for someone but had a thought, “how would I do that?...reactions2comments
Getting Ready in the Morning...Getting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and...reactionscomments
The Importance of Improvisation...Mobility aids help many of us with SMA live as independently as possible. We use wheelchairs so we can get around as...reactions1comment
Finding a Disability Friendly Hobby...Recently I felt like I was stuck in a rut with my hobbies or activities to unwind. It seemed like I was...reactions6comments
Stop Surviving and Start Living...Recently I just got over my second respiratory infection in two months. Thankfully I hadn’t been sick or needed an antibiotic in...reactions2comments
Feeling Left Behind at Times...With most of my posts, I try to offer some kind of helpful information from my past experiences. But sometimes I feel...reactions1comment
Accessible Summer Activities for Kids with SMA...Summertime is an interesting part of the year for people with disabilities, especially children. Warm weather seems great, but really it leads...reactionscomments
Removing Wisdom Teeth While Dealing with Respiratory Issues...Around the time I got my g-tube, I also realized that I was having problems with my jaw and teeth. After I...reactions1comment
Near Death Experience!...Let me tell you the story of the time I almost died...twice. As a person with a spinal fusion and severe scoliosis...reactionscomments
