Hope for the New Year...It’s 2023, a new year and new beginnings. We asked our patient leaders to tell us about their hope for the new...reactionscomments
Respiratory Care and Ventilation for Spinal Muscular Atrophy...People with spinal muscular atrophy (SMA) have progressive muscle weakness. Chest muscles that support breathing are often especially affected. This can lead...
Learning the Hard Way: Ensuring Safety for Students with Disabilities...When I was in school, I had a personal aide who accompanied me every day and followed me through several grades. She...reactionscomments
Can a Non-Disabled Counselor Be a Good Fit For Me?...As a wheelchair user, I've navigated many paths—-some smooth, some fraught with obstacles. Yet, one of the most transformative journeys I've embarked...reactionscomments
Becoming Me...Although we are only a few months into the year, as I write this, I've learned so much. About a week ago...reactionscomments
My Journey to BiPap...Two years ago, I was hit with some bewildering symptoms. A loud roaring noise invaded my left ear during a visit to...reactionscomments
Thriving With SMA...If you live with SMA, then you know the ‘waiting for the other shoe to drop’ mentality. I lived there for a...reactionscomments
SMA Assistive Equipment...Muscle weakness because of spinal muscular atrophy (SMA) can make daily tasks difficult. How motor function and independence are affected depends on...
Needing My Husband's Help in a Public Restroom...I can honestly say some of my funnier moments coping with spinal muscular atrophy have come from having to use public restrooms...reactions1comment
Tips on Dating with a Disability...I know every person‘s story is different, but the common denominator is the desire to be loved in most people's lives. As...reactionscomments
Eating Out...As I’ve gotten older and my disease, spinal muscular atrophy, has progressed a little more, eating out started to become more of...reactionscomments
The Art of Chewing and Swallowing with SMA...If you’ve lived with spinal muscular atrophy for any length of time you expect to have weakness progress in your body. However...reactions3comments
Wheelchair Accessible Seating Hacks...Who has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years...reactions3comments
Preparing For Takeoff...Over the course of the last 5 years, I have had the opportunity to fly around the country. It had been some...reactionscomments
5 Disability Tips for Attending Large Venue Events...Who doesn't like going to a concert, performance, or sporting event? The problem is, it's not always easy to attend events at...reactionscomments
Getting Wheelchair Accessible Concert Tickets...If you’ve ever lost out on accessible/ADA tickets to your favorite band or musician, today is your lucky day because I am...reactionscomments
Grieving Over a Spoon and Fork...Who would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us...reactions1comment
Cooking Without Hands...Have you ever had a desire to cook an amazing meal for someone but had a thought, “how would I do that?...reactions2comments
Getting Ready in the Morning...Getting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and...reactionscomments
The Importance of Improvisation...Mobility aids help many of us with SMA live as independently as possible. We use wheelchairs so we can get around as...reactions1comment
