A Family Affair...I have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is...reactions2comments
Traveling with SMA...When it came to my level of independence, I have been pretty lucky. An area of my life that was always a...reactionscomments
Trying to Experience an Inaccessible World...I have so many stories to tell regarding this topic. I have talked about how lucky I consider myself in previous articles...reactions3comments
Maintaining Friends While Living With a Disability...This topic recently came up while talking with other writers from this page. I am very outgoing and have always loved being...reactions3comments
The Awkward Greeting...A few weeks ago Suzanne and I went out to dinner with friends of ours to a new restaurant. We arrived first...reactionscomments
Why is He in a Wheelchair?..."Why is he in a wheelchair?" If I had a dollar every time I heard that phrase, I would be rich. I...reactionscomments
Overcoming Obstacles...What has been the biggest obstacle that you have overcome with SMA? What was your greatest challenge and how did you get...reactionscomments
Talking With Children Who Have SMA About Their Body...I remember being a child and having very bold discussions with health care providers regarding my weight. Their focus was a clinical...reactions6comments
SMA Mama – Preconception, Pregnancy, and Postpartum...I have spinal muscular atrophy (SMA) type 3. I’m unable to stand, walk, or transfer. I use a manual wheelchair and power...reactionscomments
What Is an Accessible Home? ...I have been house shopping. There is a better chance of winning the lottery than finding the perfect home that is 100%...reactionscomments
Building a Wheelchair-Accessible Home With SMA...After years of searching, I finally found a home builder for a new development that was more than willing to accommodate my...reactions10comments
Eating with SMA...Sitting down and sharing a meal with family and friends is one of the most basic social things to do. I love...reactions1comment
Performing on the Stage With SMA...The bright lights of Broadway have long been a beacon for dreamers, a symbol of passion, talent, and hard work converging to...reactionscomments
Making Sacrifices or Accommodating Each Other...Relationships are all about give and take. We wear so many different relationship hats in our life. Child and parent, sibling, friend, mate...reactionscomments
Sorry To Miss The CureSMA Conference...I really wanted to go to The CureSMA Conference a recent year! I have no idea why Mike didn’t sign us up...reactions3comments
Accessible Getaway Tips...We asked our Health Leaders for some summertime advice: Do you have a summer vacation or getaway planned? What makes for the...reactionscomments
Escaping the Cold Winters...Mike and I are thinking about embarking on another road trip soon. These Pennsylvania winters are so hard on Mike in his...reactionscomments
Cure SMA Conference Tips...I went to the Cure SMA Conference for the first time when I was 10 with my mom, dad, and grandparents (my...reactions1comment
Traveling and SMA...Traveling has always been a passion of mine. When I was younger I was fortunate enough to travel to Costa Rica, Guatemala...reactionscomments
Self-Care Routine...When I first began to read blogs and see posts about others doing their “self-care,” I remember my first thought: “Well I...reactionscomments
