What Would You Invent?...Plato said, “Necessity is the mother of invention.” We asked our Health Leaders, who live with spinal muscular atrophy, "What accessibility-related invention...reactionscomments
SMA & Technology...Do you have smart technology that you find yourself relying heavily on in your day to day life? Tell our SMA community...reactions2repliesAssistive Equipment
How Alexa Became One of My Disability Must-Haves...I was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you...reactions2comments
I Was a Guinea Pig...In the 1990s, I found myself unwittingly becoming a pioneer in the quest for advancements in SMA care. As a person living...reactions1comment
Becoming Me...Although we are only a few months into the year, as I write this, I've learned so much. About a week ago...reactionscomments
Valentine's Day and SMA...The holidays always bring their own set of challenges, and Valentine’s Day is no different for me. Throughout my life, I've never...reactions3comments
Teaching Your Kids About Disabilities...From a very young age, I've been intimately familiar with the world of disabilities. Diagnosed with SMA type 2 at just 18...reactionscomments
Independence & SMA...What would complete and total independence look like for you? How would you describe it? Do you have small every day wins...reactions3repliesTips & Advice
Rocking the Solo Life...Well, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy...reactions1comment
Worst Case Scenario: a Cold...*This article was inspired by Balancing Life When You Are Ill by Michaela Hollywood* As of writing this, I was sick this...reactions1comment
FeaturedTips for Cold/Flu Season...Getting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...reactions4repliesTips & Advice
Will you take our In America survey and help others understand the true impact of SMA?...The In America survey is now closed. To better understand the patient experience and realities of SMA, we are fielding our SMA...reactionsrepliesAwareness
What A Small Cold Can Do...In October, my mom caught a little cold during a trip to her doctor's office. She suffered a sore throat, cough, runny...reactionscomments
Getting Creative: Lack of Assistive Equipment...Do you have any recent experiences of having to get creative when there is a lack of assistive equipment, or your circumstances...reactions5repliesAssistive Equipment
My Battle With Chronic Pain and SMA...In my life, aches and pains have been constant companions. In my younger years, I chalked them up as part of the...reactions1comment
The Evolution of Adaptive Showering Equipment...Many people with disabilities, like spinal muscular atrophy, may struggle with self-care necessities, especially bathing/showering when access is hard. My situation was...reactions2comments
Sorry To Miss The CureSMA Conference...I really wanted to go to The CureSMA Conference a recent year! I have no idea why Mike didn’t sign us up...reactions3comments
Struggling to Find the Right Fit...It can be frustrating shopping for clothes that fit my body comfortably, especially dress clothes. I am at an age now where...reactions1comment
Overwhelmed...Last year, to make a long story short, I had a bunch of GI issues. The GI team decided to give me...reactions2comments
Tips for a Successful Night Out as a Wheelchair User...Going out can be nerve-wracking for anyone, but when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From...reactions3comments
