Unique Accessible Seating During a Fun Weekend Trip...Hello everyone! Hope all is well! Today, I wanted to talk about a fun and interesting accessible seating option. So my family...reactionscomments
Warm Weather Essentials...Summer is here! What things do you keep with you on a day to day basis to ensure that you can tolerate...reactions2repliesTips & Advice
A Sense of Belonging...I can't remember if I've mentioned this before but for most of my life, I hid my SMA as much as possible...reactionscomments
Getting Comfortable In My Style...Living with spinal muscular atrophy (SMA) brings its own set of challenges. Some challenges are glaringly obvious. Others play out behind the...reactionscomments
Taking Care of a Child With SMA...By its very nature, caregiving can take an emotional and physical toll on your health. If your child has spinal muscular atrophy...reactionscomments
Can Someone Really Predict Life Expectancy?...I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than...reactionscomments
Mixing Advocacy With Travel in Washington, DC...Guess what I did? I took a trip to Washington, D.C., to advocate for a cure for spinal muscular atrophy (SMA) on...reactionscomments
Can a Non-Disabled Counselor Be a Good Fit For Me?...As a wheelchair user, I've navigated many paths—-some smooth, some fraught with obstacles. Yet, one of the most transformative journeys I've embarked...reactionscomments
Disability and Abuse...By definition, abuse is something that inflicts pain or emotional distress on a vulnerable person through verbal or nonverbal acts. Abuse thrives...reactionscomments
How do you combat feeling low? What lifts you back up on those hard days? -Jennifer Moderator...reactionsreplies
The Bully In My Mind...For me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but...reactions4comments
Let’s Talk About Mental Health...How do you find yourself managing your mental health on a day-to-day basis? Please join the conversation. Below are comments from SpinalMuscularAtrophy.net...reactions1comment
Coping as a Young Adult With SMA...We asked a couple of our young Health Leaders, Kellie and Jennifer, about the transition from their teenage years to adulthood, how...reactions6comments
Young Adults With SMA: How do you balance the need for independence with the need for care?...What are your tips for the transition from childhood/teen years to adulthood with SMA?...reactionsrepliesTips & Advice
Self Care Routine...Some days it can be really hard to take care of yourself, but on the easier days you might find yourself having...reactions1replyTips & AdviceMental Health
Mental Health Awareness Month: Guilt...Do you ever feel guilt about someone having to take care of you or being your caregiver? Tell us more about your...reactions1replyMental Health
An Open Letter To My Mom, My Caregiver...As Mother’s Day approaches, I find myself reflecting on all the things my mom has done for me since I was diagnosed...reactions2comments
On Being Told To Live Independently...“You should learn to live independently. There’s a cerebral palsy patient that renovated her house and lives alone” “You should learn how...reactions1comment
Mental Health Check...May is mental health awareness month, a time to increase awareness of the importance of mental health and wellness. How are you...reactionsrepliesMental Health
Genetic Counseling...I was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no...reactions1comment
