Preparing for Pregnancy When You Have SMA - Questions for You, Your Partner, and Your Doctor...Deciding to become pregnant as a female with SMA can be a very big decision. In my case, I knew I had...reactionscomments
What Causes Spinal Muscular Atrophy?...Spinal muscular atrophy (SMA) is a genetic disorder. This means that SMA is inherited by children from their parents, and it is...
SMA Testing And Diagnosis...Spinal muscular atrophy (SMA) is an inherited disorder that can be diagnosed using a genetic test. Genetic tests use a blood sample...
Genetic Tests for SMA Diagnosis...Spinal muscular atrophy (SMA) is an inherited condition that can be diagnosed with a genetic test. People are usually diagnosed with SMA...
Spinal Muscular Atrophy: Self-Care Tips for Caregivers...Spinal muscular atrophy (SMA) is a lifelong condition. SMA is most commonly diagnosed at birth or during early childhood. The symptoms of...reactions1comment
Modifying Your Home for More Independence...Having an accessible home can help with some of the challenges of living with SMA. It can help with living more independently...reactionscomments
Now Closed: SpinalMuscularAtrophy.net Giveaway...The SpinalMuscularAtrophy.net Giveaway is now closed. Thank you for your interest! We're excited to announce a special giveaway for our community! We...reactionscomments
We Flow with the Changes in Our Child...Yes, your role as a parent changes remarkably as your child grows from that little toddler into school age and then again...reactionscomments
The Joy of the MDA Summer Camp...I think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week...reactionscomments
Remembering the First Days...As you move along in your life’s journey, the memory of life-altering events comes back in detail. We remember that wedding day...reactions1comment
The Journey Begins...I am the parent of a wonderful son who lives with SMA. What I’ve learned is that when you have a loved...reactionscomments
Everyday Life...For our firstborn son, the first five years of his life were pretty much routine. We were oblivious to any health problems...reactionscomments
Introduction to MDA and My Son's Diagnosis Journey...After waiting months for the results of all those tests completed at St. Christopher’s Hospital, we went back to see the neurologist...reactions1comment
Learning From a Fall: Safety Tips for Wheelchair Users...The other day, I fell out of my wheelchair. It’s not the first time this has happened, but it was definitely the...reactionscomments
Parking Lot Mishaps: The Wheelchair Edition...We've all witnessed that mom clutching her child's hand like it's a lifeline as they navigate a chaotic parking lot. This could...reactions2comments
What is Spinal Muscular Atrophy (SMA)?...Spinal muscular atrophy (SMA) is a genetic disorder where muscles become weak and waste away. It happens when spinal cord nerve cells...
Managing Fear in SMA...One of the topics I see covered a lot by parents of young people with SMA is the fear that they are experiencing...reactions3comments
Fears of the BiPAP...Living with spinal muscular atrophy, you'll often find yourself consulting a pulmonologist from a young age. Over the years, there have been...reactions1comment
My Experience With Massage Therapy and SMA...I wrote an article talking about the benefits I have been experiencing from stretching. I also had a long run at receiving...reactions2comments
Taking Care of Myself as Mike’s Full-Time Caregiver...In March 2020 I became Mike’s full-time caregiver. This was a big decision and one we discussed for a long time. It...reactionscomments
