Kellie Cusack

December is officially upon us! At the end of the year, I reflect upon it. Usually, my seasonal depression really affects me, and this year, I finally don't feel that...

Usually, a situation like this would leave me in a very dark place. A few weeks ago, we were in a car accident, and I thank God every day that...

I know that, overall, finding gifts can be tough, especially finding things for someone who is disabled and has specific needs, like those that come with spinal muscular atrophy. Here...

Let’s talk about financial independence. As you know from my first article here, financial freedom and independence are so hard. With Supplemental Security Income (SSI) limits, I can feel trapped...

Based on my friend Allie’s article about her morning routine, I thought I'd offer my nighttime routine. Here are some nightly tips and tricks that really help me. I would...

Hello all! Today I wanted to share my wheelchair stories and my tips for getting a new one! Since my family can't afford a van, (why are they so ridiculously...

I feel like I've mentioned my advocacy here and there, and I'm sure we all know the reason behind why it's important; for us disabled people to have equal rights...

In middle school, I gained anxiety and was in pure denial, especially when it came to getting help, I was in that “fitting in” phase in middle school. SMA has...

My friends Sawsan and James were in the Easterseals Disability Film Challenge. The film is called Out of Reach. In it, James talks about independence, “I thought I would be...

If you live with SMA, then you know the ‘waiting for the other shoe to drop’ mentality. I lived there for a long time, and sometimes, I am honestly still...

Hi friends! Today I wanted to write about my journey with Evrysdi. If you or a loved one are making the decision to get on it, but aren't sure what's...

Hello everyone! Hope all is well! Today, I wanted to talk about a fun and interesting accessible seating option. So my family and I love the band Daughtry, and we...

I can't remember if I've mentioned this before but for most of my life, I hid my SMA as much as possible when I was younger. When we’re young, we...

For me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but I guess the not knowing is the worst...

I know that I am not alone in this feeling. We ‘SMAers’ are very observant wallflowers. Meaning that we see everything. For me, this has helped me to survive when...

On February 29th, 2024, The Times Center officially hosted the first-ever SMA musical in collaboration with SMA My Way and Genentech! I wanted to write about my experience as an...

When I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on...

I was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care...

Although we are only a few months into the year, as I write this, I've learned so much. About a week ago, I decided to get rid of, by unsubscribing...

*This article was inspired by Balancing Life When You Are Ill by Michaela Hollywood* As of writing this, I was sick this past Thursday and then finally felt better today...