Kellie Cusack

I know that I am not alone in this feeling. We ‘SMAers’ are very observant wallflowers. Meaning that we see everything. For me, this has helped me to survive when...

When I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on...

I was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care...

Although we are only a few months into the year, as I write this, I've learned so much. About a week ago, I decided to get rid of, by unsubscribing...

*This article was inspired by Balancing Life When You Are Ill by Michaela Hollywood* As of writing this, I was sick this past Thursday and then finally felt better today...

Last year, to make a long story short, I had a bunch of GI issues. The GI team decided to give me a peg tube. I want to be friends...

In general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular atrophy (SMA), we have a bunch of doctors...

Sometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad to rest and will trigger my depression if...

My mom and I love to travel, and as we live close to the city, New York City, I wanted to share some of my favorite things to do and...

Last year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely devastated, so to finally be able to go...

I often struggle with low energy, year-round, but especially in the winter. I'd like to share some things that have helped me and hopefully will help you. I get low...

Sometimes I find my confidence and insecurity going hand in hand. I know this might sound strange, but it's true. I don't want to speak for all of us, but...

Hello everyone! Today, since it's officially June as I write this, and the warm weather is here, (my favorite season!) I wanted to talk about adaptive fashion and how this...

Warning: This post discusses my experience with mental health including anxiety and depression. Reader discretion is advised. I wanted to discuss my experience with therapy and mental health because it...

I just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what helped the most to make the cruise the...

I went to the Cure SMA Conference for the first time when I was 10 with my mom, dad, and grandparents (my mom's parents). To be honest, I was in...

I can't tell you how many times I've Googled "Things to do in the winter when bored," or "Boredom busters" just to be met with able-bodied people telling me to...

The other day, I visited the Supplemental Security Income (SSI) office. I had to visit because I now have my first job. I wanted to make sure that I would...