The Advocacy Issues That Matter To MeI feel like I've mentioned my advocacy here and there, and I'm sure we all know the reason behind why it's important; for us disabled people to have equal rights... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
Becoming Okay With My AnxietyIn middle school, I gained anxiety and was in pure denial, especially when it came to getting help, I was in that “fitting in” phase in middle school. SMA has... By Kellie Cusack5 min readBookmark for laterReactions0reactionsComments0 comments
What Does Independence Look Like?My friends Sawsan and James were in the Easterseals Disability Film Challenge. The film is called Out of Reach. In it, James talks about independence, “I thought I would be... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
Thriving With SMAIf you live with SMA, then you know the ‘waiting for the other shoe to drop’ mentality. I lived there for a long time, and sometimes, I am honestly still... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
My Journey With EvrysdiHi friends! Today I wanted to write about my journey with Evrysdi. If you or a loved one are making the decision to get on it, but aren't sure what's... By Kellie Cusack4 min readBookmark for laterReactions0reactionsComments0 comments
Unique Accessible Seating During a Fun Weekend TripHello everyone! Hope all is well! Today, I wanted to talk about a fun and interesting accessible seating option. So my family and I love the band Daughtry, and we... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
A Sense of BelongingI can't remember if I've mentioned this before but for most of my life, I hid my SMA as much as possible when I was younger. When we’re young, we... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
The Bully In My MindFor me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but I guess the not knowing is the worst... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments4 comments
Getting Out Of My HeadI know that I am not alone in this feeling. We ‘SMAers’ are very observant wallflowers. Meaning that we see everything. For me, this has helped me to survive when... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments2 comments
If I Knew Then What I Know NowWhen I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments4 comments
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments2 comments
Becoming MeAlthough we are only a few months into the year, as I write this, I've learned so much. About a week ago, I decided to get rid of, by unsubscribing... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
Worst Case Scenario: a Cold*This article was inspired by Balancing Life When You Are Ill by Michaela Hollywood* As of writing this, I was sick this past Thursday and then finally felt better today... By Kellie Cusack4 min readBookmark for laterReactions0reactionsComments1 comments
OverwhelmedLast year, to make a long story short, I had a bunch of GI issues. The GI team decided to give me a peg tube. I want to be friends... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments2 comments
Adding Fun to Tiring Doctors AppointmentsIn general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular atrophy (SMA), we have a bunch of doctors... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments2 comments
Learning, Growing, Healing, TryingSometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad to rest and will trigger my depression if... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
Top Things To Do in NYC That Are AccessibleMy mom and I love to travel, and as we live close to the city, New York City, I wanted to share some of my favorite things to do and... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
Getting Tips and Support at the 2023 Cure SMA ConferenceLast year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely devastated, so to finally be able to go... By Kellie Cusack4 min readBookmark for laterReactions0reactionsComments0 comments
Managing EnergyI often struggle with low energy, year-round, but especially in the winter. I'd like to share some things that have helped me and hopefully will help you. I get low... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments6 comments
CourageSometimes I find my confidence and insecurity going hand in hand. I know this might sound strange, but it's true. I don't want to speak for all of us, but... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments