Search

...Back in the 1970s, we found out that our daughter, Jessie, had spinal muscular atrophy [SMA]. A respected doctor told us that we should “put her away” because she was...

...I have so many stories to tell regarding this topic. I have talked about how lucky I consider myself in previous articles. I was relatively self-dependent up until my early...

...A diagnosis of spinal muscular atrophy (SMA) can be isolating, bringing many questions to the forefront. To learn more about the challenges of living with SMA, we are conducting our...

...My journey to getting treatment was not a conventional one. I had not been seen for my SMA in over 13 years. After college, I had moved out of state...

...The holidays are upon us. If you’re like me, and you are going to be traveling to other people’s homes for the holidays, here are my top tips for being...

...On Valentine’s Day in 2019, my life was pushed into a tailspin. I was a full-time college student and I was renting a home just outside of the city limits where...

...As his parents, we have walked with him through childhood, adolescence, young adult, and now moving into the next decade with all the years of being brave and fighting that...

...Official Rules, Terms and Conditions for the SMA Awareness Month 2022 Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE...

...Everybody deserves to get away and chill by the pool or visit their dream destination. But traveling with a disability can be a scary thought considering what medical equipment needs...

...For those of us living with SMA, these are exciting times when it comes to research and FDA-approved treatments. I’ve always been someone who has tried to consume as much...

...If we have learned anything through the pandemic, it's that most jobs can be done at home. The world has adjusted to a “new normal,” and I don’t think we...

...This article is more for parents of younger children who have SMA. There are a lot of Facebook groups revolving around SMA. I don’t actively post in these groups, however...

...I just want to remind everyone that their medical journey will be different from everyone else’s. I share this story in hopes to answer questions you may have and to...

...New year’s resolution: avoiding hospital stays. Preferably try to stay healthy and happy as much as I can. Because looking back at the previous year gave me all the hospital...

...When we moved into our new home in 1988 we had an apartment included for Grandma. In 2000 she decided to move into a senior community. At this time and after...

...When it came time to start looking at colleges, there were two major items on my list that had to be checked: a wheelchair-accessible campus and an amazing football team...