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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Commode accessories

Since I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...

Do you have experience wearing adaptive clothing?

Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...

Advice for Your Younger Self

In various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...

A Question For The Community: Comfortable Bed Cushions

"My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to sit. She started getting bedsores about a year...

Warm Weather Essentials

Summer is here! What things do you keep with you on a day to day basis to ensure that you can tolerate the heat? Any accessibility tools that are your...

What's in your winter essentials tool kit?

Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...

How do you manage your energy with SMA?

What tips do you have that have helped you manage and conserve your energy while living with SMA?...

Support Animal

Do you have a support animal/pet? What do you love about them? Would you recommend a support animal for other SMA patients?...

Featured

Dating with SMA

What has your experience been like while dating with SMA? Do you tend to date others with SMA or have you been in an inter-abled relationship before? What are some...

Self Care Routine

Some days it can be really hard to take care of yourself, but on the easier days you might find yourself having a routine you like to stick to. What's...

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