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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

SMA 3 with handweakness

Hello My son started developing a weak grip about 16 months ago . He said when he was lifting weights at rowing...

SMA & Technology

Do you have smart technology that you find yourself relying heavily on in your day to day life? Tell our SMA community...

Getting Creative: Lack of Assistive Equipment

Do you have any recent experiences of having to get creative when there is a lack of assistive equipment, or your circumstances...

A Question For The Community: Comfortable Bed Cushions

"My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to...

What season do you prefer and why?

Which season, summer, fall, winter, or spring, is the easiest and most enjoyable to live with SMA? Why?...

Advice for Your Younger Self

In various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20...

Poliomyelitis

My spine and neurological system was attacked by poliomyelitis at the age of 2 and 1/2 which left me paralyzed from the...

Back Swimming

Recently my son, his brother and I went back to hydrotherapy after 1 and half years. It was an amazing experience. We...

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Would you be willing to share your SMA caregiving story?

We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so...

Making a home accessible

What home improvement would you do to make your home more accessible?...

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