Where Does This Leave Siblings?...That has been the question for our family for 39 years. I’m sure every parent asks themselves that often. My experience is...reactions1comment
Getting Wheelchair Accessible Concert Tickets...If you’ve ever lost out on accessible/ADA tickets to your favorite band or musician, today is your lucky day because I am...reactionscomments
The Importance of Stretching...Beginning in my early 30’s, SMA started to take away a lot of my strength. As a result, I began sitting more...reactionscomments
My Journey to Becoming A Mom in a Wheelchair: Part 1...Finding the right doctor. As a little 4-year-old girl, I used to pretend I was pregnant. I would stuff a pillow up...reactionscomments
A Scary ICU Experience...Years ago, an event caused us PTSD. Jessie, 16 years old, was in the hospital’s intensive care with severe respiratory difficulties for...reactionscomments
Frequently Asked Questions (FAQs) About Spinal Muscular Atrophy...Whether you are living with spinal muscular atrophy (SMA) or a caregiver for someone with SMA, here is a guide to the...reactionscomments
Building a Wheelchair-Accessible Home With SMA...After years of searching, I finally found a home builder for a new development that was more than willing to accommodate my...reactions10comments
Michaela Hollywood...Michaela is a 30-something woman living in County Down, Northern Ireland. The youngest of four girls, she loves being surrounded by family...
Talking to Your Child About SMA...When your child has a long-term illness like spinal muscular atrophy (SMA), it is normal for them to have questions. They may...reactionscomments
A Letter to My Parents: WE are Living with SMA...Parenting isn’t a job for the faint of heart. I live in a world full of adults living with disabilities, and I...reactions4comments
Mikes New Trial For The Family - A Cancer Diagnosis...It’s now the start of a new college school year. As always, we all load up the car and take Mike back...reactionscomments
Designing New Locker Rooms...This is part 3 of an ongoing story. If you haven’t been following along you might want to start with Part 1...reactionscomments
Working with SMA ...I have mentioned in a previous article that I have worked full time. After graduating college, I had a hard time finding...reactionscomments
Your Story Matters...All of us have a unique story to share with the world. And whether it’s by writing a book, starting a blog...reactionscomments
The Number One Beach Accessory You Might Not Know About...The beach for me as someone with spinal muscular atrophy can be a difficult place. I often feel most disabled in this environment...reactionscomments
Monitoring Calories and Protein Consumption...After getting my g-tube placed in 2017, food became more of a luxury than a necessity for nutrition. While my feeding tube...reactionscomments
Sports and Recreation: Finding the Right Fit...Different types of SMA come with different physical abilities. Some people have a mild form of the illness and can walk. Others...reactionscomments
Tips on Dating with a Disability...I know every person‘s story is different, but the common denominator is the desire to be loved in most people's lives. As...reactionscomments
Feeling Left Behind at Times...With most of my posts, I try to offer some kind of helpful information from my past experiences. But sometimes I feel...reactions1comment
Finding Hope...It broke my heart when one of my good friends' daughters was diagnosed with SMA. The diagnosis was tentative, as he was...reactionscomments
