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Forums

Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

What's in your winter essentials tool kit?

Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...

How do you manage your energy with SMA?

What tips do you have that have helped you manage and conserve your energy while living with SMA?...

Support Animal

Do you have a support animal/pet? What do you love about them? Would you recommend a support animal for other SMA patients?...

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Dating with SMA

What has your experience been like while dating with SMA? Do you tend to date others with SMA or have you been in an inter-abled relationship before? What are some...

Self Care Routine

Some days it can be really hard to take care of yourself, but on the easier days you might find yourself having a routine you like to stick to. What's...

Young Adults With SMA: How do you balance the need for independence with the need for care?

What are your tips for the transition from childhood/teen years to adulthood with SMA?...

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Tips for Cold/Flu Season

Getting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...

ABLE Savings Accounts

Do you know what an ABLE account is? Do you have experiencing opening one/contributing to one for your own expenses of living with a disability? Share with our SMA community!...

Have you experienced thoughtless comments recently?

One of our patient leaders, Mike, shared in a recent article that he's heard thoughtless comments from folks about being in wheelchair. These comments really strike him the wrong way...

Tips on Speaking Up!

How do you speak up for yourself? Do you rely on others to help you? Share some tips for others living with SMA on how they can speak up for...

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