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Forums

Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Working with Nonprofits

Do you have experience working with nonprofits? Have you been able to receive funding through them for assistive technology or something else? Begin the discussion below....

Accessibility Challenges

Have you faced accessibility challenges lately? Maybe when trying to go out and do something social? We want to hear your stories here. Share below....

Some tips for using and purchasing assistive equipment are ___________.

Fill in the blank! What is your experience with purchasing assistive equipment? Do you have any fears about using them? Are there certain wheelchairs or assistive tools that have helped...

A Challenge I've Recently Overcome Is ______________

Fill in the blank. What is a challenge you've recently overcome while living with SMA? How would you encourage others who are currently facing challenges?...

A Misconception I've Faced Living with SMA Is __________

What misconceptions have people expressed to you about living with SMA? How did you approach them / prove them wrong? Join the conversation below....

Accessible Housing Tips

Have you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you made? Join the conversation....

Mental Health Month

May is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your mental health? Share your experience with managing mental health with our spinal muscular...

Advice: Younger patients with SMA

What advice would you tell your younger self? Are there things you wish someone would've told you?...

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